Zahra and Nephrotic Syndrome: Almost Free!

My baby had her checkup at SDMC with Dr Indon after a month tapering the steroid (4 tabs, alternate day) and we are pretty nervous with the result. Even though the urine dip test we do everyday showing a good result, trace and negative, it still depends on the protein reading in the blood. Plus, it is the first time she going to SDMC without her mommy, and they going to withdraw the blood :(

Luckily my MIL was around and Zahra is pretty close to her, so she accompany MrComot for the checkup.

Alhamdulillah..the result came clean - we can say that Zahra is almost Nephrotic free!

Her protein is 67 and her cholesterol is 3.8! That is a significant drop from before - 10.3 then 6.8. Syukur sangat2 ya Allah almighty.

Anyway she still need to be on steroid as we have to taper it slowly. So it's gonna be for another 2 months. Last month was 4 tabs, now reduced to 3 tabs for 2 weeks, then 2 tabs for the next 2 weeks, then 1 1/2 tabs for the next 2 weeks and 1 tab for final 2 weeks, all on alternate days, and she will be steroid free! InsyaAllah...

But Dr Indon already warned us that we have to be very careful during the tapering period as the leakage might triggered back if she has any sickness or infection, so we have to monitor the urine test closely. If it goes back to 3+ immediately give her antibiotic to treat any infection and if it maintained at 3+ for 3 days, we have to see her immediately.

Hopefully it won't shoot at all, maintained at trace/negative..amin amin ya rabbal 'alamin...

Other than that she still taking probiotic every night to help her digestion problem.

Get well soon sayang. Mommy so happy with this news and how well you are dealing with it. You stay strong to chase this disorder ok.


Zahra yesterday evening, doze off after back from the checkup. Tired with the blood withdrew because she's fighting it like usual.


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