I don't have the emotional turmoil anymore..so don't worry, mommy is doing okay here. Trying my best here..
Anyway, am going to write the progress of Zahra with this disorder, just to share what's going on and keeping track of her record. The last urine test (yesterday) still showing the same amount (4+) even though the swollen face reduced a bit.
Below is the trail pictures of her on the second day confirmed with NS. We took second blood test and urine test that day to confirmed on the count of the protein leakage. The reading is remained the same, hence Dr Anushree starts the prescribtion straight away.
At the cafe..still puffy. In fact he body is actually swollen but it's hard to see on a toddler because it always mistaken as chubbiness. But then I noticed, kalau tekan2 memang tegang, due to water retention.
About Nephrotic Syndrome, they are a lot of other thing we should watch out too. First, the side effect from NS itself, Zahra will have high cholesterol. Well, it already shows in the blood test :( Her current reading is 10+, double up the maximum of 5 for kids. The tryglocerin (fats) also very high.. Nothing much we can do on the high cholesterol, but if it's too dangerous, she might have to take another medicine to reduce the risk of heart and blood vessel problems.
Side effect of the corticosteroids pulak, she will have high blood pressure and we have to control this, it has to be kept at 130/80 mmHg or below. So far the reading is okay as we only start the steroids for 3 days. Please please please no extra medication for Zahra...