Zahra and Nephrotic Syndrome - Day #34 and The Progress

It has been over a month my little Zahra on the Nephrotic Syndrome's treatment. Alhamdulillah, she's progressing well even though I have this urgency, cepat-cepat lah turunnn bacaan protein, so that she can stop eating that ubat! But what to do..it's a long process, I have to bear with it to get a good result.

We went to see her paed last Monday and her urine lab test came out with a very good reading, 0.75 (2+). The week before it was 1.5 (3+). She still taking the high dose cortisteroid, 25mg prednisolone.

Oh ya, talking about medicine, I was a lil bit mixed-up previously. I thought we will start with low dose first, if no response then will go for higher dose. Actually it's the other way round. The treatment starts with high dose, then if good response, will go to lower dose.

So, Zahra has taken the high dose for a month now..and is going to continue it for another 10 days. According to the latest study, a 6 week high dose treatment will make it most likely not to relapse. So we are following the track. We going to submit her urine next Monday and if the reading is 1+, we will start the lower dose treatment - prednisolone 20mg x 5ml taken on alternate days.

If the reading achieves 1+...

Please please please Ya Allah...let it be on track.

BP check by the paed

Her blood pressure is also good, Alhamdulillah....

She still cries when we meet the paed, maybe remembers about the blood withdraw but turn to cheeky and happy baby towards the end. She will say bye-bye to the paed and even throw her a flying kiss! Haha..macam tahu2 je nak balik. Oh ya, she also hates the blood pressure check and will cry whenever her paed wrap that thing around her arm but finally we found a way to avoid the crying..just by standing! Maybe she feels farther from the paed, thus safer :P

Below is her progress tracking. Dr Anushree said I don't have to test the urine everyday anymore, can do it on alternate days. So sometimes I do selang sehari, sometimes 2 hari hehe..Depends on how busy the morning is.

Date	Result	Weight	Dosage
2 July 2011	3+	9.0kg	25mg x 5ml
3 July 2011	3+	9.0kg	25mg x 5ml
4 July 2011	3+	9.0kg	25mg x 5ml
6 July 2011	3+	9.0kg	25mg x 5ml
9 July 2011	2+	9.0kg	25mg x 5ml
10 July 2011	2+	9.0kg	25mg x 5ml
13 July 2011	1+	9.0kg	25mg x 5ml
15 July 2011	2+	9.2kg	25mg x 5ml
18 July 2011	2+	9.5kg	25mg x 5ml
21 July 2011	2+	9.5kg	25mg x 5ml

Her urine test this morning, my eyes is saying it's between 2+ and 1+.

^_^

On other health issue, Alhamdulillah, she's doing well without any extra sickness. Last week she had a small cough and it almost gave me this heart attack, afraid she couldn't take it and it will get worse but thank God, nothing serious, kejap je dia batuk, tak sempat bagi ubat pun and it went away. Allah Maha Penyayang...

Overall my baby is doing great. And please stay healthy ok? with the haze and hanky-panky weather now.. Mommy try to contain you the best I can. Oh ya, we also have to burn our flight tickets to Terengganu to visit my parents..well, I haven't cancel it yet, but most probably have to la..sbb it's gonna be this weekend and a high time to monitor Zahra if the reading going down or not. But at the same time I miss my family there and we not gonna be in Tganu for Raya because I'm gonna be 8 months then.. then confinement pulak..sigh. We'll see how lah. Yang penting Zahra okay! ;)